Abstract

BACKGROUND: Lifestyle modification has a significant role in chronic daily headache (CDH) management. Participatory action research (PAR) can play an important role in managing chronic medical conditions. However, it has been scarcely used in CDH management. OBJECTIVES: This study aimed to empower patients with CDH to modify their lifestyle in order to reduce both their headache and related psychiatric co-morbidities in a multidisciplinary headache clinic at Baqiyatallah hospital, Tehran, IR Iran. METHODS: In the PAR plan, 37 patients (27 females) diagnosed with CDH were selected using purposeful sampling. Along with face-to-face group sessions, all available communication means such as phone calls, emails, short message system (SMS), and social media (Telegram) were used to facilitate the process. Questionnaires of health promotion lifestyle profile (HPLPcapital I, Ukrainiancapital I, Ukrainian), visual analog scale (VAS), and depression-anxiety-stress scale (DASS21) were used to collect data. The data were analyzed using SPSS software. RESULTS: Mean age of the patients was 38.33 (+/- 9.7) years. Both "general pain" and "the worst imaginable pain" reduced (mean of reduction: 2.56 +/- 2.7 and 2.3 +/- 2.9, respectively, P < 0.001). > 50 of pain reduction occurred in "the worst imaginable pain" category (-1.45 +/- 2.02, P < 0.001) and mean VAS score reduced to 5.20 (+/- 2.3) compared to the start of the study (7.50 +/- 1.9, P < 0.001). Mean DASS-21 score also reduced significantly for depression (P < 0.016), anxiety (P < 0.026), and stress (P < 0.008). HPLPcapital I, Ukrainiancapital I, Ukrainian score significantly improved (118.17 +/- 14.8 vs. 160.83 +/- 16.4, P < 0.001) and the highest increase was seen in the subscale of "stress management" (17.73 +/- 2.8 vs. 25.53 +/- 3.9, P < 0.001). CONCLUSIONS: The empowering PAR plan combined with new communication tools helped the CDH patients better handle their lifestyle, reduce their headache, and lower their symptoms. Further studies with better use of currently available communication tools and social media are recommended for action research to be more applicable.